Sadly I’m writing today from the ever beautiful 6th floor of my weekend all inclusive staycation at Loyola Hospital. On such a beautiful fake spring day in January, it is such a bummer.
This week I was feeling a lot more sluggish than the usual chemo/radiation hangover. I’ve had a headache for a few days. Yesterday morning my legs started to feel weird & as the day progressed my body was more and more achey. I laid down around 4 in a winter hat, sweatshirt & sweatpants, under a down comforter and quilt and still couldn’t stop shivering. I took my temperature and it read anywhere from 100-101.4. Eeeeek.
Dr. Potkul & Kathleen had me come to the lab first to draw for updated numbers. My white blood count on Tuesday was 1.2 which is lowww. Bless their hearts as my body decides to do this on a Friday evening! Unfortunately my count came back even lower, .9, which makes me ‘neutrapenic’ and automatically lands me in the hospital, likely through the weekend.
They’ve tested me for any and every type of infection – including blood cultures from both arms & my port. I’m still waiting on results but Dr. Potkul said they will likely all come back negative & this is really a result of the treatments. He was explaining again how rough of regiment the combo of chemo & radiation I’m going through is and that this happening didn’t totally surprise him.
They’ve been pumping me with antibiotics since last night. I had an reaction to one – I could not stop itching and I was so red where I was itching. They put Benadryl into my port and whoa baby, I felt like I was floating. Deep space nine floating! It worked really quickly thankfully. They also started me on a medicine to help bring my count up.
Hoping to see the doc soon and learn more about what it takes to get home. From what I gather, it’s going to take time. White blood cells are what fight infections so I know I can’t leave until they are higher.
How’s my morale? I’m doing my best to stay positive but it’s hard today. Physically, it sucks feeling so crappy. Mentally? Pretty freaking frustrated. I really am glad we did radiation and chemo together, truly, but the setbacks have been hard. There are worse things in life than having to spend a few nights in the hospital and I’m glad I’m here so I can start to feel better but this also likely means that chemo will be delayed again and that’s a soul crusher. Emotionally I could use a couple breaks in my favor!
Keep us in your thoughts and prayers. I could sure use them today. Thank you!!